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Fundraiser to Benefit Naugatuck Teen With Cystic Fibrosis

A golf tournament and concert will be held in May to raise money for ongoing medical expenses.

 

A golf tournament and concert will be held on Saturday, May 11, to raise money for medical care associated with treating a Naugatuck teen who has Cystic Fibrosis. The following information was provided by organizers of the golf tournament:

Ryan Trochsler is a 17-year-old Naugatuck, CT, resident who was diagnosed with Cystic Fibrosis before he was born.  This is an incurable disease, but with lots of medical care and prescription medicine, Ryan is trying hard to just be a “normal teenager."

Cystic Fibrosis is a chronic, progressive, and genetic disease.  It affects the lungs, liver, pancreas, digestive system, and reproductive organs.  A defective gene causes the body to produce very abnormal, thick and sticky mucus.  This mucus clogs the lungs creating a breeding ground for bacteria, thus leading to life threatening lung infections.  The symptoms of CF are wheezing, shortness of breath, and persistent cough and excessive mucus and poor weight gain.

Ryan's had many surgeries throughout his childhood.  After birth he required three surgeries, keeping him in the hospital for the first three months of his life.

Weight gain has been a major challenge for Ryan.  People with CF require a higher calorie intake, because they burn calories just breathing, exercising, coughing and fighting infections.  They don't absorb nutrients as easily as someone without CF.  Compounding this problem is his severe allergies to milk and eggs.

Ryan's pancreas isn't producing enough insulin, which has led to diabetes.  He requires six insulin shots daily.  He checks his blood sugar numerous times a day.

Ryan's daily routine includes 25 medications, time consuming breathing treatments, airway clearance therapy to loosen mucus in his lungs, and oral antibiotics, inhaled antibiotics, and inhaled steroids, medication to maintain liver function, two types of Insulin, and Enzyme pills for meals and snacks to help him digest foods, acid reflux meds, and inhaled mucus thinner and many more to maintain his health every day.

In August 2012, Ryan had a CT-SCAN of his lungs, which showed his CF has progressed.  Ryan has a moderate amount of scarring in his lungs that is irreversible.  He has developed a chronic cough, which has affected him physically and emotionally.

Ryan is a 10th grader at the Waterbury Arts Magnet School.  He loves music, it is therapy for him.  He has touched so many lives with his fun-loving personality.  He is an inspiration and a hero to all his friends and family.

Ryan’s yearly medical expenses are extraordinary and our committee is trying to lessen the monetary burden on Ryan’s parents by executing a very successful fundraiser.  Please help us in this endeavor in any way you can.  Your business name will get a lot of advertising at the event.  Thank you in advance for your support!

Sponsorship Details (See below or the attached fliers for details) 

Please help us raise much needed funds to help Ryan and his family.

We are holding a benefit golf tournament and concert on

Saturday, May 11, 2013

Hop Brook Golf Course

615 Church Street, Naugatuck, CT.

Registration Time: 10:30 a.m. Tee time: Noon Concert to follow.

Any donations are gratefully accepted. 

Player Package

$125

Includes 18 holes of golf, golf cart, dinner, live music, and gift

Silver Package

$200

Includes your company/name on a shared sponsorship sign

Gold Package

$700

Includes 2 Player Packages and your own

sponsorship sign

*Platinum Package*

$1,200

Includes 4 Player Packages, your own sponsorship sign, a Thank You on our Facebook page with your company information, top mention of your business at event 

Merchandise Donation

Any merchandise will be gratefully accepted and put into raffle baskets or silent auction.

Your business name will be acknowledged on a sign with the items.

Questions, call Jenn at (203)704-0509 or Events.For.Ryan@gmail.com

citizen February 25, 2013 at 06:15 PM
Hi, Is there a way to just make a donation?
Paul Singley February 25, 2013 at 06:45 PM
Hey good question. I would either call Jenn at this number (203) 704-0509 or email Events.For.Ryan@gmail.com. Thanks
Kristin February 26, 2013 at 02:01 AM
Awesome! So glad to see this event. My son also has CF. May is CF awareness month. you can make a donation online @ www.cff.org.
Jennifer February 26, 2013 at 09:43 PM
Hello! I am a committee member for Ryan's benefit. We are hoping to make this event a huge success for Ryan and his family. You can definitely make a monetary donation, sign up to golf, go to the dinner and live concert, or donate merchandise for the raffle. For more information, please email us at events.for.ryan@gmail.com
Sarah Gray April 14, 2013 at 12:13 PM
I love what u all r doing to raise awareness for cf !! Sadly my family knows all to well how this can affect families , this September will be 6 yrs that we lost my cousin Sharon Teresa , she was a vibrant 19 yr old who had a lot of fight !! Every yr her sister does many fundraisers for her team !!! So please if u can't be there in person please donate all u can to help find a cure !!! I hope u raise tons for Ryan !!! Good luck !!!!
Bob Clark April 22, 2013 at 01:27 PM
You could either mail it to Jenn or drop it off at the pro shop
Bob Clark April 22, 2013 at 02:58 PM
We are looking for a couple of more groups to sign up. Please contact Jenn or stop down the golf shop at Hop Brook and ask for Bob Clark, PGA Professional, and he will assist you in this.

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